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chILD-EU Register

FP7-coo-RGB In order to better understand the natural course, risk factors, treatments and reasons for the development of childhood interstitial lung disease (chILD), we will collect and analyse details of symptoms and quality of life, clinical data and also biological material in a Register and Biobank. In the long run, this Register will serve the improved understanding of the disease and will lead to the development of new and effective approaches to treatment.     




2014.12.04. klein_Foto Josefin



Information booklet "Living with chILD"

In view of the rarity of Children’s Interstitial Lung Diseases – chILD, there are only a very limited number of doctors significantly familiar with them, especially in terms of diagnosing and treating them.

A search of the internet for further information unfortunately is more troubling than beneficial. Frequently people develop anxiety, fear or melancholy when trying to deal with these chronic diseases, because of the limited knowledge about them and their causes.

With aid from the European Union, an international expert panel has been formed, that has set the goal to correct this situation. An additional goal is to place the needs of the children afflicted with these diseases and their families first. This booklet is only a single building block in this project. Of course, it cannot replace the need for talking with your child’s treating doctor. Rather, it is intended to provide supplementary information regarding the condition of your child.


The booklet is available in:


English (UK Version)