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Patient/parent section

Patient Support

How can I participate as a patient?

You are attending with your child a large center which is actively submitting patients. Such centers specialized in chILD have obtained an ethics vote from their local review boards. After you have given your consent, your local physician can submit your data and biomaterials; when complete, the peer-review process and all other activities can be started.

As an alternative and after the appropriate consents, your local physician may collect all necessary information and biomaterials from you and send them directly to the central register, where the data will be entered.

Patients Support Groups

  • Germany:

contact clinician:

Prof. Dr. med. Matthias Griese

Email: Matthias.Griese@med.uni-muenchen.de

Phone: 089/44005-7871


  • United Kingdom:

contact clinician:

Prof. Dr. med. Andy Bush

Email: A.Bush@rbht.nhs.uk


contact chILD-Foundation:

Chair: Carlee Gilbert

Website: http://www.childlungfoundation.org/


  •  Turkey:

contact clinician:

Prof. Dr. med. Nural Kiper

Email: nkiper@hacettepe.edu.tr


  • Italy:

contact clinician:

Dr. med. Deborah Snijders

Email: child.italia@gmail.com


  • Spain:

contact clinician:

 Dr. med. Antonio Moreno Galdo

Email: amoreno@vhebron.net


  • USA:

contact chILD Foundation USA:
President: Ann Gettys
www Icon http://www.child-foundation.com/



  • France:

contact clinician:

Prof. Dr. med. Annick Clement

Email: annick.clement@trs.aphp.fr


contact chILD-Foundation:

AFPIE-Association française des pneumopathies interstitielles de l'enfant
President: Yaëlle Paillier
38 rue des Martraits

Email: lou.protc@orange.fr

Website: www.afpie.fr