Patient/parent section
Patient Support
How can I participate as a patient?
You are attending with your child a large center which is actively submitting patients. Such centers specialized in chILD have obtained an ethics vote from their local review boards. After you have given your consent, your local physician can submit your data and biomaterials; when complete, the peer-review process and all other activities can be started.
As an alternative and after the appropriate consents, your local physician may collect all necessary information and biomaterials from you and send them directly to the central register, where the data will be entered.
Patients Support Groups
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Germany:
contact clinician:
Prof. Dr. med. Matthias Griese
Email: Matthias.Griese@med.uni-muenchen.de
Phone: 089/44005-7871
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United Kingdom:
contact clinician:
Prof. Dr. med. Andy Bush
Email: A.Bush@rbht.nhs.uk
contact chILD-Foundation:
Chair: Carlee Gilbert
Website: http://www.childlungfoundation.org/
- Turkey:
contact clinician:
Prof. Dr. med. Nural Kiper
Email: nkiper@hacettepe.edu.tr
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Italy:
contact clinician:
Dr. med. Deborah Snijders
Email: child.italia@gmail.com
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Spain:
contact clinician:
Dr. med. Antonio Moreno Galdo
Email: amoreno@vhebron.net
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USA:
contact chILD Foundation USA:
President: Ann Gettys
http://www.child-foundation.com/
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France:
contact clinician:
Prof. Dr. med. Annick Clement
Email: annick.clement@trs.aphp.fr
contact chILD-Foundation:
AFPIE-Association française des pneumopathies interstitielles de l'enfant
President: Yaëlle Paillier
38 rue des Martraits
78200 MANTES-LA-JOLIE
FRANKREICH
Email: lou.protc@orange.fr
Website: www.afpie.fr
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