Other countries
If you would like a consultation for a potential chILD case
OR
if you would like diagnostics on patient material
OR
if you would like support with data entry and upload of documents,
Please supply the following documents and materials:
1 ) Signed patient consent form
For potential inclusion of the case in the register, please obtain your patient's informed consent. The patient information brochures for the appropriate age can be downloaded below:
Patient under the age of 18
Patients over the age of 18
The signed patient's consent forms can be send by fax (+49 89 5160 771) or regular mail.
2) International standardized Referral Letter
The standardized referral letter can be send by E-mail / regular mail / fax. You may upload directly into the register if you already have a Data Capture Login and created a "New Patient".
This information is necessary for peer review by international experts.
3) Imaging (X-Ray-Thorax Series, CT)
The imaging data can be send as CD by regular mail. JPGs can be send by e-mail*. If wished, we can provide you with a personal and secure link for upload of DICOM files in our databox system (please contact us by e-mail). You may also upload the files directly into the register if you already have a Data Capture Login and created a "New Patient".
4) Biomaterials
Please send
- at ambient temperature: EDTA (always triplett: patient (5 -10 ml) + parents (10 ml))
- frozen: BAL
5) Diagnostic testing
Based on the data provided, the case will be reviewed and feedback will be given to you. If wished, surfactant or related diagnostics will be performed.
* You may only send pseudonomyzed documents.
