Rare childhood interstitial lung diseases comprise a group with a variety of diseases which are not well clinically characterized and which often lead to impaired gas exchange and induce proliferation of connective tissue in the lung. The incidence of these rare diseases in Europe is less than 0.5 to 1 cases in 100.000 in one year.
The children often present with persistent fast breathing, to the point of dyspnoea, deficient oxygen supply with blue lips and fingers and some of the children also have frequent infections of the lung.
Adequate diagnostics and therapy will be achieved in cooperation with the disease’s reference centers and should be organized with the help of the chILD-EU register.
Prof. Matthias Griese presented the chILD-EU project during the project's Kick Off Meeting in Munich which took place on January 18th and 19th 2013 at the Dr. von Hauner Children's Clinic. Click on image above to view video.
The chILD-EU project is currently comprised of 10 academic partners from 5 European countries.
Our goal is to determine the long term course of childhood interstitial lung diseases (chILD), optimize diagnosis as well as therapy, initiate quality assurance protocols and promote clinical and scientific progress.
Orphans Unite: chILD better together – European Management Platform for Childhood Interstitial Lung Disease
EURO 3,0 million
Ludwig-Maximilians-University of Munich, Prof. Dr. med. M. Griese