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Patient/parent section

Patient Support

How can I participate as a patient?

You are attending with your child a large center which is actively submitting patients. Such centers specialized in chILD have obtained an ethics vote from their local review boards. After you have given your consent, your local physician can submit your data and biomaterials; when complete, the peer-review process and all other activities can be started.

As an alternative and after the appropriate consents, your local physician may collect all necessary information and biomaterials from you and send them directly to the central register, where the data will be entered.