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I have a case

You want

1) PDF Icon diagnostic tests

 

2) help with input of data or

 

3) to include a case  

please supply the following documents and materials: 


3.1 ) Signed patient consent form

For potential inclusion of the case in the register, please obtain your patient's informed consent. The consent forms for the appropriate age can be downloaded via the Consent Forms Register page (opens new page).

The signed patient's consent forms can be sent by fax (+49 89 4400-5-7715) or regular mail.


3.2) Case overview (Referral Letter/Epicrisis)

The case will be peer reviewed by international experts. For this purpose, a brief case overview in English (referral letter / epicrisis) will be required.

This letter can be send by E-mail / regular mail / fax.

We also need completely filled out chILD work sheets which can be used for the first and also for consecutive visits. Using these, you automatically capture all information necessary!

You may upload directly into the register if you already have a Data Capture Login and created a "New Patient".


3.3) Sample / Biomaterials

 Please send, using the sample shipping sheet,

  • ambient temperature immediatelly by regular mail: EDTA blood (always triplett: patient (5 -10 ml) + parents (10 ml)), wax block, slides
  • frozen: BAL, tissue

for details see (Labmanual)

Note: No delievery of samples possible on Fridays, Saturdays and Sundays.

The lab will be closed for Christmas holidays from 20.12.2017 till 08.01.2018!

Shipping Address 

                     

SOP - Tissue for cells


3.4) Previous discharge letters (may be in local language)

The previous discharge letters can be send by e-mail*, regular mail or fax. You may upload the documents directly into the register if you already have a Data Capture Login and created a "New Patient".

Alternatively, we may upload the documents for you.


3.5) Imaging (X-Ray-Thorax Series, CT)

The imaging data can be send as CD by regular mail. JPGs can be send by e-mail*. If wished, we can provide you with a personal and secure link for upload of DICOM files in our databox system (please contact us by e-mail).

You may also upload the files directly into the register if you already have a Data Capture Login.

Alternatively, we may upload the files for you.


* Take care to send pseudonomyzed documents.