Germany
You want
2) help with input of data or
3) to include a case
please supply the following documents and materials:
3.1 ) Signed patient consent form
Please obtain your patient's informed consent. The current version for the appropriate age can be downloaded below:
Patient under the age of 18
Patients over the age of 18
The signed patient's consent forms can be send by fax (+49 89 4400 57715) or regular mail.
3.2) Case overview (Referral Letter)
The case will be peer reviewed by international experts. For this purpose, a brief case overview in English (referral letter) will be required.
This letter can be send by E-mail / regular mail / fax.
You may upload directly into the register if you already have a Data Capture Login and created a "New Patient".
3.3) Sample / Biomaterials
Please send, using the sample shipping sheet,
- ambient temperature immediatelly by regular mail: EDTA blood (always triplett: patient (5 -10 ml) + parents (10 ml)), wax block, slides
- frozen: BAL, tissue
for details see (Labmanual)
Note: No delievery of samples possible on Fridays, Saturdays and Sundays.
3.4) Previous discharge letters (may be in local language)
The previous discharge letters can be send by e-mail*, regular mail or fax. You may upload the documents directly into the register if you already have a Data Capture Login and created a "New Patient".
Alternatively, we may upload the documents for you.
3.5) Imaging (X-Ray-Thorax Series, CT)
The imaging data can be send as CD by regular mail. JPGs can be send by e-mail*. If wished, we can provide you with a personal and secure link for upload of DICOM files in our databox system (please contact us by e-mail).
You may also upload the files directly into the register if you already have a Data Capture Login.
Alternatively, we may upload the files for you.
* Take care to send pseudonomyzed documents.
