Germany
You want
2) help with input of data or
3) to include a case
please supply the following documents and materials:
3.1 ) Signed patient consent form
Please obtain your patient's informed consent. The current version for the appropriate age can be downloaded below:
Patient under the age of 18
Patients over the age of 18
The signed patient's consent forms can be send by fax (+49 89 4400 57715) or regular mail.
3.2) Case overview (Referral Letter)
The case will be peer reviewed by international experts. For this purpose, a brief case overview in English (referral letter) will be required.
This letter can be send by E-mail / regular mail / fax.
You may upload directly into the register if you already have a Data Capture Login and created a "New Patient".
3.3) Sample / Biomaterials
Please send
- ambient temperature immediatelly by regular mail: EDTA blood (always triplett: patient (5 -10 ml) + parents (10 ml)), wax block, slides
- frozen: BAL, tissue
for details see (Labmanual)
3.4) Diagnostic testing
In case diagnostic testing with consultation advice are wished, please include an "Überweisungsschein".
Based on the data provided, the case will be reviewed and feedback will be given to you. If wished, surfactant or related diagnostics will be performed.
3.5) Previous discharge letters (may be in German)
The previous discharge letters can be send by e-mail*, regular mail or fax. You may upload the documents directly into the register if you already have a Data Capture Login and created a "New Patient".
Alternatively, we may upload the documents for you.
3.6) Imaging (X-Ray-Thorax Series, CT)
The imaging data can be send as CD by regular mail. JPGs can be send by e-mail*. If wished, we can provide you with a personal and secure link for upload of DICOM files in our databox system (please contact us by e-mail).
You may also upload the files directly into the register if you already have a Data Capture Login.
Alternatively, we may upload the files for you.
* Take care to send pseudonomyzed documents.
